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Table 1 Sample characteristics for cross sectional survey (n = 380)

From: Improving the assessment of quality of life in the clinical care of myeloma patients: the development and validation of the Myeloma Patient Outcome Scale (MyPOS)

Setting of questionnaire completion

 

Hospital outpatient

266 (70%)

Hospital inpatient

18 (4.7%)

Participant’s home

93 (24.5%)

Other/not known

3 (0.8%)

Gender

 

Male

231 (60.8%)

Female

149 (39.2%)

Age

 

Median (range)

69 (38–91)

<65

113 (29.7%)

≥65

267 (70.3%)

Marital status

 

Single

33 (8.7%)

Married / partnered

275 (72.4%)

Divorcer / separated

26 (6.8%)

Widowed

45 (11.8%)

Not known

1 (0.3%)

Ethnicity

 

White British

326 (85.8%)

White Other

27 (7.1%)

Black

12 (3.2%)

Asian

10 (2.6%)

Other

5 (1.3%)

Religion

 

Atheist

34 (8.9%)

Christian

305 (80.3%)

Muslim

7 (1.8%)

Other

21 (5.5%)

Not known

13 (3.4%)

Highest educational level

 

Did not finish school

27 (7.1%)

Secondary school graduate

183 (48.2%)

College / technical qualification

88 (23.2%)

University first degree

37 (9.7%)

University higher degree

21 (5.5%)

Not known

24 (6.3%)

Occupation status

 

Working or student

49 (12.9%)

Not working

47 (12.4%)

Retired

283 (74.5%)

Not known

1 (0.3%)

ECOG performance status

 

0

133 (35.0%)

1

146 (38.4%)

2

64 (16.8%)

3

36 (9.5%)

4

1 (0.3%)

Treatment status

 

Off treatment

199 (52.4%)

On treatment

181 (47.6%)

- High dose treatment with stem cell support

5 (1.3%)

- Chemotherapy / targeted therapy alone

141 (37.1%)

- Maintenance treatment

35 (9.2%)

Disease phase

 

Newly diagnosed

79 (20.8%)

Stable / plateau phase

174 (45.8%)

Relapsed / progressive

127 (33.4%)

Immunoglobulin type

 

IgG

227 (59.7%)

IgA

79 (20.8%)

IgM

3 (0.8%)

Light chain

65 (17.1%)

Non-secretory

4 (1.1%)

Not known

2 (0.5%)

ISS Stage at diagnosis

 

I

105 (27.6%)

II

83 (21.8%)

III

81 (21.3%)

Not known

111 (29.2%)

Months since diagnosis

 

0-12

101 (26.6%)

13-24

63 (16.6%)

25-36

31 (8.2%)

37-48

36 (9.5%)

Over 48

127 (33.4%)

Not known

22 (5.8%)