Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries

Rich, Anna; Baldwin, David; Alfageme, Inmaculada; Beckett, Paul; Berghmans, Thierry; Brincat, Stephen; Burghuber, Otto; Corlateanu, Alexandru; Cufer, Tanja; Damhuis, Ronald; Danila, Edvardas; Domagala-Kulawik, Joanna; Elia, Stefano; Gaga, Mina; Goksel, Tuncay; Grigoriu, Bogdan; Hillerdal, Gunnar; Huber, Rudolf Maria; Jakobsen, Erik; Jonsson, Steinn; Jovanovic, Dragana; Kavcova, Elena; Konsoulova, Assia; Laisaar, Tanel; Makitaro, Riitta; Mehic, Bakir; Milroy, Robert; Moldvay, Judit; Morgan, Ross; Nanushi, Milda; Paesmans, Marianne; Putora, Paul Martin; Samarzija, Miroslav; Scherpereel, Arnaud; Schlesser, Marc; Sculier, Jean-Paul; Skrickova, Jana; Sotto-Mayor, Renato; Strand, Trond-Eirik; Van Schil, Paul; Blum, Torsten-Gerriet

doi:10.1186/s12885-018-5009-y

BMC Cancer

Table 2 Basic features of data collection in 35 European countries

From: Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries

	Year est.	Mandatory	Consent	Form	Verbal	other	Data Completeness (%)	Year	Histo only	Clinical	C-R	DCO
Albania	2011	No	No				90%	2013	No	Yes	Yes	No
Austria	1969	Yes	No				Not available	N/A	Yes
Belgium	2006	Yes	No				90–94	2013	No	Yes	Yes
B & H	2004	Yes	No				59	2011	No	Yes	Yes	Yes
Bulgaria	1952	Yes	No				70–79	2011	Yes
Croatia	1959	Yes	No				80–89	2013	Yes
Czech Rep	1977	Yes	No				95–100	2013	No	Yes	Yes	No
Denmark	2000~	Yes	No				95–100	2013	No	Yes	Yes	Yes*
Eng & Wales	2003~	Yes	No				95–100	2013	No	Yes	Yes	No*
Estonia	1953	Yes	Yes	Yes			95–100	2011	No	No	Yes	Yes
Finland	1953	Yes	No				95–100	2012	No	Yes	Yes	Yes
France	1975	No	No				< 50%	2013	No*	No	Yes	No
Germany	1929	Yes	Yes	Yes			70–79	2013	No	Yes	Yes	Yes
Greece	2013	Yes	No				< 50%	2013	No	Yes	Yes	Yes
Hungary	1970~	Yes	No				70–79	2013	Yes
Iceland	1955	Yes	No				95–100	2013	No	Yes-rarely	Yes	Yes-rarely
Rep. Ireland	1991	No	No				90–94	2012	No	No	Yes	Yes
Italy	1996	No	Yes		Yes		51	2013	Yes
Lithuania	1984	Yes	No				95–100	2013	No	Yes-rarely	Yes	Yes-rarely
Luxembourg	2013	Yes	Yes			implicit	Not available	N/A	No	Yes	Yes	Yes
Malta	1957	Yes	No				95–100	2013	No	Yes	Yes	Yes-rarely
Moldova	1983	Yes	Yes	Yes			50–59	2012	Yes
Netherlands	1989	No	Yes			implicit	95–97	2013	No	Yes	Yes	No
Norway	1953	Yes	No				97	2009	No	Yes	Yes	Yes
Poland	1952	Yes	No				80–89	2012	Yes
Portugal	1988	Yes	No				60–69	2011	No	Yes	Yes	Yes
Romania	1981	Yes	No				< 66%	2011	No	Yes	Yes	Yes
Scotland	1958	Yes	No				95–100	2013	No	Yes	Yes	Yes
Rep. Serbia	1990	Yes	No				60–69	2013	No	No	Yes	Yes (PM)
Slovakia	1952	Yes	No				70–79	2008	No	No	Yes	Yes
Slovenia	1950	Yes	No				90–94	2010	No	Yes	Yes	Yes
Spain	1960	No	Yes	Yes			Not available	N/A	No	No	Yes	No
Sweden	1958	Yes	No				95–100	2013	No	No	Yes	No
Switzerland	1969	No	No				95–100	2013	No	Yes	Yes	Yes
Turkey	1993	No	No				< 50%	2009	No	Yes	Yes	No

Countries not in bold do not have a national dataset. B&H Bosnia and Herzegovina. DCO death certificate only. N/A not applicable. PM post-mortem only. Year est.; year that registry established
~ = Lung cancer specific data collection established. Histo only; only those patients with a histological or cytological diagnosis are recorded in the dataset. If no, then are cases confirmed on clinical grounds alone, or clinico-radiological grounds (C-R), and finally are cases included if the diagnosis of lung cancer is based on the death certificate only (DCO). Denmark; DCO*; accepted as diagnosis in National Cancer Registry, not in the National Lung Cancer Registry. England and Wales; DCO*; accepted as diagnosis in the National Cancer Registry not in the National Lung Cancer Audit. France; The Epithor surgical database would be histological confirmed cases only, the National Cancer Registry is not

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ISSN: 1471-2407

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