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Table 3 Top ranked mean score of individual CNAT question according to domain (Patients)

From: Supporting the patients with advanced cancer and their family caregivers: what are their palliative care needs?

 

Mean Score

Information

1.

I needed information about financial support for patients, either from government and/ or private organisations (e.g. support for medical expenses).

1.05

2.

I needed information about palliative care services

0.79

3.

I needed guidelines or information about complementary and alternative medicine

0.64

4.

I needed information about correct diet (food to eat, food to avoid)

0.59

5.

I needed information about the current status of my illness and its future course

0.56

Psychological problems

1.

I needed help with worries that I would become a burden to others around me

0.80

2.

I needed help with my concerns for the family

0.66

3.

I needed help with worries about treatment sequelae

0.62

4.

I needed help in coping with fear of recurrence

0.59

5.

I needed help with accepting role changes at home, at work and/ or in society after this illness was diagnosed

0.48

Practical support

1.

I needed help with my economic burden due to this illness (treatment costs, loss of income)

0.86

2.

I needed treatment near my home

0.72

3.

I needed transportation services for getting to and from the hospital

0.49

4.

I needed accommodation services near the hospital where I was being treated

0.39

5.

I needed someone to help me with housekeeping and/ or child care

0.23

Physical symptoms

1.

I needed help with lack of energy and/ or fatigue

0.65

2.

I needed help with trouble sleeping or oversleeping

0.58

3.

I needed help with pain

0.54

4.

I needed help with lack of appetite

0.48

5.

I needed help with diarrhoea or constipation

0.47

Hospital facilities & services

1.

I needed rehabilitation medical services to help with functional recovery after treatment

0.54

2.

I wished for a short waiting period between the reservation and the doctor appointment

0.53

3.

I needed a designated hospital staff member who would be able to provide counselling for any concerns, and guidance with the course of my treatment, from the point of diagnosis to the period after the discharge.

0.51

4.

I needed an opportunity to share experiences or information with other patients (e.g. patient support groups etc)

0.39

5.

I wished to be treated in a pleasant environment

0.32

Health-care staff

 

1.

I wished to be able to see the doctor in a quick and easy way when in need

0.63

2.

I wished my nurses to promptly attend to my discomfort and pain

0.38

3.

I wished my nurses to explain any treatment or care that was being given to me

0.32

4.

I wished my doctor to be easy, specific, and honest in his/ her explanation

0.32

5.

I wished sincere interest and empathy from my nurse

0.30

Social/ religious/ spiritual support

1.

I needed help in finding the meaning of my situation and in coming to terms with it

0.23

2.

I needed help and support from people close to me (family, friends)

0.21

3.

I needed help with difficulties that arose in family relationships after this illness was diagnosed

0.16

4.

I needed help with difficulties that arose in interpersonal relationships after this illness was diagnosed

0.11

5.

I needed religious support

0.10