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Table 1 Demographic characteristics of patient participants for each stage of the study

From: Development and validation of a patient reported experience measure for experimental cancer medicines (PREM-ECM) and their carers (PREM-ECM-Carer)

 

Stage I

Stage II

Stage III

Stage IV

Interviews (n = 22)

Focus groups (n = 12)

Cognitive interview (n = 5)

PREM-ECM Prior (n = 162)

PREM-ECM on trial (n = 162)

PREM-ECM prior-14 (n = 11)

PREM-ECM on-trial-15 (n = 23)

Age Mean (SD)

63.64 (10.16)

67.92 (7.55)

66.00 (5.51)

59.11 (11.72)

61.48 (11.40)

62.23 (10.62)

65.26 (7.78)

Age range (years )

42–83

52–79

59–73

30–88

27–87

41–77

47–80

Gender (Male) %(n)

45.45% (10)

91.67% (11)

100.00% (5)

47.5% (77)

52.5% (85)

54.5% (6)

47.8% (11)

Ethnicity

 White British %(n)

95.45% (12)

100.00% (12)

100.00% (5)

91.25% (146)

91.4% (148)

100% (11)

100% (23)

 Irish %(n)

-

-

-

3.13% (5)

1.85% (3)

-

-

 White other

-

-

-

1.88% (3)

-

-

-

 Indian

-

-

-

0.63% (1)

1.23%(2)

-

-

 Chinese

4.55% (1)

-

-

1.88% (3)

0.62% (1)

-

-

 Any other Asian background

-

-

-

-

1.23% (2)

-

-

 African

-

-

-

0.63% (1)

1.85% (3)

-

-

 Caribbean

-

-

-

-

1.23% (2)

-

-

 White & Black African

-

-

-

-

0.62%(1)

-

-

 White& Asian

-

-

-

0.63% (1)

-

-

-

Marital status

 Single

4.55% (1)

16.67% (2)

20.00% (1)

8.0% (13)

10.5% (17)

-

19.0% (4)

 Married/domestic partner

90.90% (20)

66.67% (8)

60.00% (3)

80.9% (131)

80.9% (131)

100% (9)

66.7% (14)

 Widowed

4.55% (1)

8.33% (1)

20.00% (1)

4.3% (7)

4.3% (7)

-

-

 Divorced

-

8.33% (1)

-

4.9% (8)

3.7% (6)

-

14.3% (3)

 Separated

-

-

-

0.9% (2)

0.6% (1)

-

-

Employment status

 Employed

-

-

-

25.2% (39)

18.2% (29)

44.4% (4)

23.8% (5)

 Self-employed

-

8.33% (1)

25.00% (1)

1.9% (3)

6.3% (10)

-

4.8% (1)

 Student

-

-

-

-

0.6% (1)

-

-

 Retired

72.72% (16)

83.33% (10)

75.00% (3)

52.3% (81)

51.6% (82)

55.6% (5)

57.1% (12)

 Unable to work

18.18% (4)

8.33% (1)

-

18.1% (28)

22.0% (35)

-

9.5% (2)

 Home maker

9.1% (1)

-

-

2.6% (4)

1.3% (2)

-

4.8% (1)