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Table 6 Reason for item removal for PREM-ECM-on-trial

From: Development and validation of a patient reported experience measure for experimental cancer medicines (PREM-ECM) and their carers (PREM-ECM-Carer)

Question Number

Question (High Score Answer)

Ceiling > 79%

gender bias

Age Correlation

Correlation with other items

Expert opinion

Rasch

6

I am given enough time to ask questions

X

  

X

  

7

I feel comfortable asking the research team any questions I have

X

     

16

The research team treats me as an individual

X

  

X

  

3

I am able to ask the research team questions

X

  

X

  

11

I was told what to do if I experienced side-effects

X

 

X

   

12

I am aware I may experience side effects from the trial

X

     

17

The research team gives me enough time to talk about what is important to me/my needs and priorities

X

  

X

  

18

I feel the research team is approachable

X

     

19

I am able to bring family/friends to my appointments as I want

   

X

  

25

My family/friends receive the support they need

      

26

I do not feel anxious about being on the trial

 

X

X

   

29

The trial is well organised

   

X

  

30

I am kept informed of delays during trial treatment

 

X

    

32

I am still working/studying/taking part in usual activities whilst on the trial

    

X

 

1

I have enough information about my options if the trial does not work/benefit me

     

X

2

I was informed that the trial might not work

     

X

15

I feel the research team listen to me

     

X

20

The research team supports me to cope with my anxieties about being on the trial

     

X

24

I am able to access the support available to me if I need to

     

X

31

I do not feel there was unnecessary waiting between consultations, tests, results, and/or pharmacy.

     

X